UK and Ireland SMS Support Group

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 Post subject: SPS West of Scotland
PostPosted: Sat May 31, 2014 9:33 am 
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Joined: Fri Jan 18, 2013 12:41 pm
Posts: 4
Location: Neilston near Glasgow
Anyone in West of Scotland that attend the Southern General Hospital in Glasgow interested in forming a group to meet every so often at the SGH with a specialist in SPS ? I know there are a few of u out there. Please it wud be good to all get together and compare notes etc.,


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 Post subject: Re: SPS West of Scotland
PostPosted: Tue Apr 21, 2015 4:39 pm 
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Joined: Tue Apr 21, 2015 4:33 pm
Posts: 1
Does anyone suffering SPS have seizure like episodes? My SPS affected mostly lower extremities and now moved to upper and have moments of spams that appear like seizures but I'm aware of surroundings...spasms, fixed eye movements etc.


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 Post subject: Re: SPS West of Scotland
PostPosted: Wed Apr 22, 2015 7:35 pm 
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Joined: Fri Jan 18, 2013 12:41 pm
Posts: 4
Location: Neilston near Glasgow
You would be better joining the Facebook group for the UK and Ireland, there you will find answers to all your questions. I also have everything you mention and more. See you in Facebook


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 Post subject: Re: SPS West of Scotland
PostPosted: Sun Aug 09, 2015 10:04 pm 
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Joined: Wed Jul 22, 2015 11:10 pm
Posts: 3
I attend the Southern General and I would be very happy to meet up- I know there are a few people who also attend but chance meeting may be as difficult as winning the lottery. I am there every 6 weeks for treatment and also still work in Glasgow so could be there outside this cycle.
I don't "do " Facebook so I hope that I don't have to join to access others with SPS.


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 Post subject: Re: SPS West of Scotland
PostPosted: Mon Aug 10, 2015 11:06 am 
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Joined: Fri Jan 18, 2013 12:41 pm
Posts: 4
Location: Neilston near Glasgow
Anns
Give me some dates yr at the SGUH and I will see if there is an overlap with mine. You never know there could be !! I assume you are in for IVIg.


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 Post subject: Re: SPS West of Scotland
PostPosted: Mon Jun 13, 2016 8:39 pm 
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Joined: Mon Jun 13, 2016 8:35 pm
Posts: 2
Hi, not sure if this topic is still active but currently awaiting results for SPS testing at what used to be the Southern General. Would be cool to be in touch with local SPS people. Am due back there in September for results.

Thanks
Jen


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 Post subject: Re: SPS West of Scotland
PostPosted: Wed Jun 15, 2016 12:04 pm 
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Joined: Fri Jan 18, 2013 12:41 pm
Posts: 4
Location: Neilston near Glasgow
I am in Big Betty's next Wed 22nd June in Ward 68 for Ivig if you want to see me and every 4 weeks after that. Ward 68 has moved temporarily into the Neuro Sciences building ward 62 follow the directions at the reception of the neurology building - go up to second floor turn left and follow the link corridor into the Neurosciences building take the main lift to the fourth floor turn left and follow directions ask for Richard Allen I am there from 8am until 1pm.

Hope to see anybody who has SPS for a chin wag.

Bye

Richard


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 Post subject: Re: SPS West of Scotland
PostPosted: Fri Nov 11, 2016 7:08 pm 
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Joined: Wed Jul 22, 2015 11:10 pm
Posts: 3
I have lost the thread on this- I think I may have missed you Richard on my last visit in to BB's. I attend about every 7 weeks so back in for IVIG 29/11- I get a "day pass" so am generally only in Ward 68 in the afternoons. I don't tend to move about too much when I am there as my veins give problems- new Christmas Board game I think called hunt the vein!
anyway hopefully catch up with others at some point. I expect like most SPS people I am not enjoying the sharp reversal in ability brought on by the cold weather.


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